Wednesday, August 5, 2009

My head is spinning

I still haven't heard from Memorial Health in Savanah. Perhaps I should try getting to the specfic doctor, but he was blaming everyone else as this whole thing was going on. I just want somebody to admit that allowing my son to get sick beyond the point where he could be cured was wrong. I don't want their money -- unless they want to give me enough to start a foundation that would pay people's bills for screening tests. I could call it the Life O' Mike Fund.

I went to see my doctor today. Wendy is about as cool as doctors get. She scheduled me at the end of her day and spent an hour with me. She wanted to hear about Mike and how he faced his own death.

I told her how frustrated I am at the way Memorial Health is blowing me off. How much harm could it do to say failure to treat a known medical condition is wrong?

So, I have two ideas: a Web site called Failure to Treat where people could come and tell their stories. It could help develop anecdotal evidence.

The second is the Life o' Mike Fund, which would help people pay for diagnostic tests they need.

Wendy especially liked the Life o' Mike Fund. Maybe the Failure to Treat site could be part of Life o' Mike.

So, I have to start thinking about getting a board together and getting a 501(c)3. Then I have to start writing grants. I know I can do that since it's mostly about why the service is needed and who would be helped.

We could advise people to be very purposeful about getting information from their doctors. If you had a colonoscopy yesterday, call your doctor and insist he or she tell you what he or she saw. The problem is, so few people know how to advocate for themselves. So we could train people in that.

I think I can do this, but not for a couple of months. I'm still really, really tired and my head is spinning from the possibilities

Wendy is about my age, so we often joke about being women of a certain age. I told her I've gone beyond going into a room and forgetting why I went in there. I now stand up and forget what room I was heading for. Her solution? Pretend you were just getting up to stretch.

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